Marching with Maeve
Thank you for visiting our page! We are honored that Maeve is the 2019 Birmingham Kidney Walk Patient Chair for the Alabama Kidney Foundation (AKF). With your help we can raise at least $20,000 to help the many central Alabama families that face a daily battle with kidney disease!
Here is Maeve's full story:
Maeve has Stage 1 CKD (Chronic Kidney Disease). When Maeve was born, we discovered that she had an extremely high level of urine retention on her left kidney. When she was 3 days old her pediatric nephrologist told us that on a grade scale of 1 (best) to 4 (worst) she was a high 3 or low 4 regarding the concern of the left kidney. He believed she had a ureteropelvic junction (UPJ) obstruction which caused a dam-like backup of urine in Maeve’s left kidney. We began our routine appointments with our pediatric nephrologist and urologist, who would be the surgeon should she need surgery. At 2 months old she had a MAG 3 renal scan to determine a comparative function of her left and right kidneys and their output. This test concluded that she would need surgery.
When she was 6 months old, Maeve had surgery on her left kidney called a pyleoplasty. Maeve’s six-hour surgery went well and we were relieved because we felt that the hardest part was behind us. However, in December 2017, Maeve became really sick with an infection that required hospitalization at Children’s Hospital in Birmingham. With a couple of days of IV antibiotics and fluids, she bounced back to her old self and we were able to go home.
In February 2018, on Maeve’s 1st birthday we saw the same warning signs as we had in December and recognized them early enough to get ahead of her 2nd infection. In March 2018, she had a 3rd infection which resulted in her being put on a daily antibiotic. As of September 2018, Maeve’s imaging showed improvement in her left kidney! In February 2019, Maeve stopped taking her daily antibiotic. We pray she maintains great health with no infections and for continued health and growth of her left kidney.
Maeve will continue to be monitored for complications with her kidney disease. We are thankful for the doctors and nurses who have all spent significant time with us giving Maeve the best chance of having two fully functioning kidneys. We are so grateful that Maeve is doing well but realize that many other families face a continual uphill battle with CKD. This is why we ask for your help in raising money for the AKF!